Stowarzyszenie Rodzin z Chorobą Fabry'ego

Stowarzyszenie Rodzin z Chorobą Fabry'ego (Association of Families with Fabry Disease) was founded in 2002 with the primary goal of integrating families affected by Fabry disease. The association is dedicated to supporting these families and plays a crucial role in advocating for improved access to existing therapies for all patients. They actively work to shorten the path to treatment, ensuring that individuals with Fabry disease can access the care they need more efficiently.