EB Research Partnership

The EB Research Partnership provides crucial resources for the Epidermolysis Bullosa (EB) community, focusing on available treatments and support for affected families. Through their resources page, they highlight current therapies like VYJUVEK, FILSUVEZ, and ZEVASKYN. They also offer a comprehensive list of external resources for EB families, including links to advocacy groups, newborn care guides, clinical publications, and medical organizations. For fundraisers, the partnership provides various materials like impact booklets and reports, showcasing their work and progress.